Tristan

Do we have an update Tristan?  I’m always thinking about you guys and praying for Mason’s health too.  I just forget to tell you!

So happy everything went well! My 3rd child was born with a cleft palate. She will be having surgery in December sometime. The craniomaxillofacial surgeon is on the same floor as the spina bifida doctors so we see all those sweet kids while walking down to hall. I am not looking forward to surgery. She will have just turned one and it will mean 6 weeks of going back to puréed food only and arm braces so she can’t put her hands in her mouth. Praying for continued healing for Mason.

So glad to hear that Mason’s surgery went well. Praying for you as you learn to juggle new challenges. Praying for Mason too.

And for Kayla’s dd.

Surgeries on littles are SO hard. Our now 5 year old had 4 in his first year for brain cancer, hydrocephaly and craniosynostosis (fusing of the skull bones). I remember those sleepless nights so well. And all the restrictions and Dr appts. So hard! At the same time, I remember being so thankful that my son had the option of surgery and treatment as it could have been so much worse! 
Praying for God’s blessing on you as you take care of the blessings he’s given.

Rebecca 

Prayers and HUGS.

My little one is in a hip spica cast for two more weeks (she’s been in it for six weeks) and I just looked at your blog and I sympathize and at the same time I feel convicted about being impatient about our situation.

We had terrible constipation issues for about two weeks.  Hope you are able to find what works for him!

A few things we’ve done these past six weeks (besides TV).  For lots of these things we had to lay her face-down on a crib mattress on the floor and place the activities on the floor next to her.  My daughter’s a bit older, but hopefully this can help:

-we’ve been doing Five in a Row with short activities every day
-coloring/painting/PlayDoh
-we made our own silly putty with washable glue and Borax.  We experimented with adding different food coloring and glitter
-copywork
-math card games
-short outings in her wheelchair
-face-down on a scooter so that she can wheel herself around and do sidewalk chalk outside
-puzzles
-having friends over for a visit really lifts her spirits and passes the time quickly, even though it can be tiring for me
-lots of music
-musical instruments.  This week we are doing Lentil with FIAR, and the harmonica I gave her has been a real hit.  For anyone who’s read the book, she wants to become an “expert” like Lentil.
-berry picking (no, really!  We took her to my dad’s small patch to pick some blueberries from her wheelchair)

Keeping you in my thoughts and prayers!