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Need advice and prayers
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I’m beginning to wonder if dd5.5 is PDD-NOS. Testing is out unless we have a miracle in the finance department. In the meantime, are there any specific things I can be doing at home to help her? I’ll admit I’m not very consistent in the discipline department, and right now I’m doing more crying than anything.
Specifically, she has begun wandering into the street (thankfully always within sight of the house, but still unacceptable), has a language delay that is currently showing echolalia, inablity to answer anything but yes/no questions (and that’s not all the time), and inability to carry on conversations. She still has an occasional tantrum if she doesn’t get her way. She also wanders during ds’s 4-h meetings and co-op, since there’s really nothing for her to do there. I could leave her with dh for co-op since he’s home, but not for 4-h.
Even if you don’t have any advice, I’d appreciate your prayers. As I stated earlier in the post, I’m struggling with the whole thing. I love her, but I feel inadequate to help her, and I’m having trouble laying everything at the foot of the cross.
Thanks in advance,
Karen
ETA: I’ve been looking at resources for in-home language therapy for awhile, but so far can’t find anything I like.
I’d like to add that she seems very smart. She is potty trained and feeds herself. She is mostly independent with dressing herself (still needs help with socks/tights and tying shoes) and can put her shoes on the right feet. She began setting the table with no instruction from me. She can count and recognize numbers to 100 and number words through ten. She can read simple books. I don’t know how many words she recognizes, but probably 100 or more. She has taught herself to write and actually has better handwriting than her brother if you take into consideration she’s using unlined paper. She can type words if she hunts and pecks for the letters. She likes to draw and paint. So I know she’s teachable. I’m just at a loss how to go about it when we begin formal lessons after her birthday.
First, I admit to being totally ignorant about most of the acronymns and symptoms you are concerned about.
But I will say that you sound like a loving, great Mom. I will lift you and your sweet little one up in prayer and ask that God continue to give you wisdom about how to teach her.
You may find that you need some outside assistance, and that is okay. Just stay focused on what God wants for your family and don’t worry about if it fits in the ‘perfect homeschooler’ box.
Hugs to you both.
Heather
If you can find it at your local library (or on Amazon, etc.), get the book, “The Way I See It: A Personal Look at Autism and Asperger’s” by Temple Grandin, PhD. She has autism….that’s right, she has autism AND she has a PhD, so don’t buy into any notion of what your daughter cannot accomplish in the long run. Mind you, Dr. Grandin is high-functioning, but she will tell you about the tantrums, speech delays, social difficulties, academic woes that she had, and yet she has accomplished much.
Her mother chose not to believe the common prognosis of the day (1950) that said her child should be institutionalized, so she set about figuring out how to best help her daughter. Dr. Grandin writes about this in her books about autism and give practical advice to parents on how to handle different aspects of autism. You can just read the chapters you feel most apply at this time. They are relatively short and an easy read. I found that this book gave me a lot better understanding of how my autistic son thinks and why he does certain things.
I’ll try to think more on this and give you additional comments, but I’ve got to run right now. Be encouraged.
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