I’ve mentioned my daughter in different threads. She will be 14 in May and was diagnosed with PDD-NOS when she was 12 1/2. I know we are late in ‘getting the ball rolling’ for her. I broke my ankle shortly after the diagnosis, so that pushed me back even more. I wish I would have understood a long time ago what was going on with her. It would have spared us several years of tears in homeschooling. Needless to say our homeschooling has been very inconsistent and I regret that. But, here we are and I really could use some words of wisdom.
I think I have pretty much decided on what we will be using this coming fall for school…..CM☺ My DD is working primarily at a grade 3-4 level. My question is habit training. I know this should have been done at an earlier age, but I feel we need some help in this area. Her diagnosis put her on target age wise for vertical processing (crystallized intelligence/strength), but at a 9-10 year old horizontal processing (fluid intelligence/weakness). So, this means she may act like a 13 year old outwardly in some ways, but her logic/reasoning/understanding (making connections) is well below her biological age. So, I need to be careful that I don’t do things with her that she would consider ‘ babyish’. But, I feel we need to work on habit training. What would be the best way to approach that with her?
We have a few friends/family members who do not understand her special needs because she appears outwardly to be a normal 13 yo. So, when she refuses to do something because she thinks it will make her uncomfortable or may hurt her, she cries and refuses to do it. She has sensory processing and overload issues as well. Or, she literally has made herself sick in the stomach getting anxious about going to a friend’s house without me. She is very self-conscious since she hit puberty. Some are looking at it as a disobedience issue, or she is too emotional, or she has an attitude problem, she is self-centered, etc. My husband and I are praying for wisdom to know how to handle these situations and to know how to help our DD. It has been difficult knowing what to do. I am getting a handle on the academic teaching, but the emotional, sensory, and attitude problems still need work. She also really needs help with time management. She is very loving and for the most part complies. But, she will resist if asked to do something that makes her uncomfortable. So, we have been accused of giving into her whims. We know we have failed in certain areas, but not all of these problems are just a matter of her sin nature. It’s difficult to discern what is and what isn’t sometimes, but with some there is not much grace. How can we help our special needs teenager in these areas?
I am using something else right now, but I used Laying Down the Rails and the Children’s guide with my teens on down to littles together. It wasn’t babyish for the teens. I approached it as for the family, Mom included. It will be tempting to work on more than one behavior at a time, but it works better if you stick to one.
For ASD materials that you can tweak, see difflearn.com
Others won’t understand unless they have been there. I just remind them sometimes that my son has autism when they rant too much.
Retrofam – Thanks. I will look into these resources.
If I tell some of these people my daughter has autism, they would think that’s ridiculous. I tried to explain what the neuropsychologist said, and his recommendations, to a certain couple in our church, who were doing fitness with her and some other homeschoolers. She has some physical weakness on one side of body due to CP, so she has some physical weakness and incoordination. They had her do something that ended up causing a problem with her knee (not serious, but painful to her). Then she began refusing to do certain excercises. They are only looking at it as an attitude problem. I know she can have an attitude and be disrespectful sometimes, but often there is a legitimate (in her mind) reason why she resists. But, to them it is just a sin problem. They think, because of the diagnosis, that we are making excuses for her behavior. This is really bothering me. I start questioning what are we doing wrong? I know training has been inconsistent, because we didn’t know what we were dealing with, other than here is a girl who had a very difficult first 2 years of her life, being tossed around between foster homes and her birth father, was neglected severely by him, and even now has insecurities, trust issues, anxiety, even though she is very attached to us. Attached to me so much that if something happened to me, I don’t know if emotionally she could handle it. I don’t know how to gently start loosening the apron strings without her feeling rejected. We were told we are too soft.
If anyone else has some words of wisdom, please share. We want our DD to progress and be all that she can be, but we need all the guidance we can get.
Others will think what they will, but it plants a seed of what high functioning autism can look like. It makes me feel better to say it sometimes because I am being an advocate for my son.
It is a difficult balance between playing the autism card, and holding the child accountable for misbehavior, no matter what their reasons or struggles. I am often too soft on my son. I remind him that the law holds him responsible for his behavior, autism or not and that’s what we are preparing him for. I’m not the best example for how to discipline, etc. My principles on paper are Biblical standards and preparing him to be independent some day. Some days I do better than others. Praying for you.
I’m right there alongside you with many of the same issues. My dd10 struggles with similar things. Sonya posted the review of the book “Uniquely Human…” and I have to say that it has profoundly changed my view of my dd and how to handle her “behavior.” I’ll post more later…pit stop on road trip ; )
Sally and Nathan Clarkson’s new book “Different”…I had no idea the severity of her son’s illnesses! But she speaks about the challenge of mental illness and the judgment that can come with it.
Thanks for the support. I went ahead and ordered Uniquely Human, since it doesn’t cost a lot. So many resources. Not sure which are best for our situation, but any suggestions are appreciated.
I ordered Laying Down the Rails and my sister has For Instruction in Righteousness that I can borrow. I have seen that book and know that it will be good for moral habits and character training.
Mrsmccardell- I am interested in hearing more about how you are handling things with your daughter.