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Febrile seizures!?
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My three year old had a febrile seizure yesterday with a sudden onset of high fever! It was quite scary to watch and I felt so helpless. We went to the emergency room because it lasted so long. This is a first for us and I’m scared of him aging more in the future! Has anyone here experienced this with your child?
My Sister-in-law had 3-4 as a child and her daughter has had one. They called rescue and spent several hours at ER and left with instructions to use Tylenol or ibuprofen and tepid baths etc to keep her from getting a high fever again. They’ve done that and it’s been a year or two and she’s never had another. However it was a terrifying event for them.
I hope your little one is feeling better today and that you can rest.
My oldest, now 16yo, had a seizure a day after his second DTaP immunization, at the age of 20 months. They called it a ‘febrile seizure’ though I didn’t feel his temp was very high (101?) nor did it spike (he had had it all night long and had the seizure in the morning). So I don’t know if this information is helpful to you…but he has had many high fevers since (several up to 105 and once up to 106) and has never had another seizure. I did not let him have any more immunizations for many years and he still has not received them all, but we’re slowly getting them and hopefully he’ll be ‘up to date’ by the time he starts college.
My best advice would be to not worry about your son. I know that is easier said than done. Likely he will not have another, or maybe he will have one or two more in his childhood – all without consequence. That is the typical way these things go. I wish you all great health and peace.
Best,
Shannon
My friends child had them at around that age or a bit younger. It was very scary but no harm ever came to her and she out grew them.
So sorry you went through this. My third son had one and it was the scariest thing ever, not only for me but the whole family!
I got him checked from a Neurologist to rule out anything but it was febrile seizure.
He is 5 now so we should be safe but was always nervous every time he had a fever after that.
It might never happen again to your child, hopefully!
Yep, my daughter had them from the time she was almost 2yo. She just turned 5yo and hasnt had one in over a year so I am hoping she has outgrown them. Unfortunately for us, she seemed to get them even with relatively low fevers and was sick quite a lot every winter, so she usually had them a couple times each winter. Even though I had experienced seizures with other people and pets in the past it was very very scary! My girl had a time of about an hour afterward where she would cry but otherwise not be very responsive at all and totally limp. It was perfecftly normal for having had a seizure- called the post ictal phase but that was the really scary part for me.
I always take her to ER afterward so we can get immediate treatment for any underlying infection.
Any time she was sick or I susupected she might be coming down with something I always would take her temp frequently and I would give a preventative dose of advil so I could sleep without worrying or getting up to check on her. I was a bit of a worry wart. 🙂 Normally I like to let my kids low fevers work themselves out as it helps the immune system fight the infection, but in her case that didn’t work.
😉
I think my girl had a total of 6 seizures. Hopefully no more for your little one, or mine!
My son had this happen when he was three also. He’s ten now. It was a sudden fever, and there wasn’t any reason to think he would have another one. He did though. About 5 months later, he had one without a fever. He had several over the next couple days, and we started medication. It didn’t really work, and he had several over a few day period a couple months later. I think it happened another time or two that way. Also, he had some mini ones or something where he would just fall over. We changed medicine, and he hasn’t had one in 6 years.
They keep asking if we’re ready to get him off the medicine, but I think we’ll wait til after the onset of puberty. He has had some night terror type problems that increasing his medicine seemed to help. And we did try to decrease one time, and he just felt too bad. So we wait.
My husband had some as a child and was on medicine 10 years. Every time they tried to take him off, he would have one. I still get very worried about fevers, because people with regular seizures can have one from a fever too.
I am in no way trying to worry you, and TONS of kids have this and don’t end up like my son. Just thought I’d tell you. Even if it becomes a problem, life doesn’t stay as stressful as it is for you today. I don’t think about it 24 hrs a day or anything like that. When I get worried (like when he’s sick) I remind myself that my husband hasn’t had a seizure in 40 years!! And we obviously never worry about it. He’s even an airline pilot!
I hope you find peace today.
Just have a moment, but our oldest daughter had these as well. Even scarier, from age 1-3 she had a few sezuires that were independent of the fever (though most were brought on by fever). Up until she had these, we did not use medication to treat fever – believing that the fever’s job was to kill the infection and that the white blood cells would be more effective if they were utilized to fight a virus and creat a ‘memory’ for next time. All that being said, the seizures were so frightening for me that I did begin medicating her as soon as a fever began. You can talk to your doctor, but we had to layer fever medication (Tylenol and Ibuprofen) every 2 hours to keep the fever down to a manageable level.
That is the practical aspect of dealing with the physical side of this…NOW for the good (spiritual!) stuff!
During this time, the Lord graciously showed my husband that he had not completely given this child to God. He broke through with the Lord in prayer on this and was able to surrender her to God – for whatever God wanted to do with her life.
At the same time, I finally got mad enough at the enemy to STAND UP and fight in prayer. Basically, after two years of these (sometimes unexplainable) attacks, my spirit said, “No more!”. We dug into prayer with the Word of God one weekend…and she never had another seizure.
My point is…do what you need to do in the physical, but also dig into the Word and prayer to get victory through Christ.
Blessings and prayers to you!
HUGS
My older daughter had eight seizures in one day back shortly before her 3rd birthday. She was sick and had a high temp, but spent five days in the PICU so that doctors could rule out other causes. They were concerned because she continued to have seizures even after her temp had come down.
Anyway, that was three years ago and she hasn’t had an incident since then. Praying that you, too, will have a positive outcome.
My second born had a febrile seizure when he was about 14 mos. old. It was terrifying for me. I had just sent my husband to the store for ibuprofen when the Tylenol I had given him wore off and his fever spiked. I called 911. I think it’s the scariest thing I’ve ever faced as a mother.
I normally am a ‘let-the-fever-do-it’s-job” sort of person and didn’t use a lot of fever-reducing meds. But after that, especially with that child, I tend to keep him medicated when he has a fever and I check him more at night. He’s 3.5 now and hasn’t done it a second time.
Golly this seems very common. My dd just turned 9, but she had a ten-minute long seizure when she was ten hours old. She was life-flighted to a major city, treated at the NICU with megadoses of antibiotics and has never had another. (After an emergency c-section, I was unable to travel with her or to be with her for a week, but dh was incredible!) I have felt peace all along that that one single seizure was just a blip in her life and we’ve been blessed to have that be true (so far).
I hope that your experience is either of the variety already described – brought on by fever/sickness – or an isolated event like ours. Either way, you are ready for whatever happens and you know it can be a scary but okay event in the long run.
[Hugs] for you and your kiddo!
Yes this was a very experience for us! A first for my son. Im seeing how common these really are but it’s scary not knowing how to treat it and prevent it. We are usually natural minded when it comes to letting fevers run there course, etc and using natural remedies so now im not confident and lettinga fever get too high too quick and be ok with it! The doctor does not seem to be worried since it’s only his second one but if he has a nother one they want to run some test!
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